Labour MP Bill Esterson has given his support for children with life-threatening and life-limiting conditions in Sefton Central at a Westminster event held by children’s palliative care charity Together for Short Lives.
The event took place during Children’s Hospice Week, the national awareness and fundraising week for children not expected to reach adulthood and the services, like children’s hospices, that support them.
Bill met with Anna Gill OBE, a parent carer of a young person with a life-limiting condition, in addition to representatives from Together for Short Lives, the charity behind Children’s Hospice Week.
He agreed to write to Sefton’s Clinical Commissioning Groups and Sefton Council to ask what action they are taking to integrate services for children who need palliative care.
Bill also committed to asking health and social care commissioners how they were funding palliative care services supporting children with life-limiting conditions - and their families - in Sefton Central.
Bill said: "Providers of children’s palliative care offer a vital lifeline to families. Yet commissioning of services, particularly from the voluntary sector, is patchy and inconsistent. Well commissioned and co-ordinated palliative care helps families make the most of their time together and enables services to develop to meet their needs.
"It is essential that health and social care services work together to ensure that services are joined up and funded fairly and sustainably by the NHS and local authorities to ensure that the excellent care they provide can continue.”